The Registry is a collaborative effort between the U.S. Department of Health and Human Services and New York City. The Registry also works in partnership with:

Advisory Groups

Originally, there were three advisory groups - the Community Advisory Board, the Labor Advisory Board and the Scientific Advisory Board - that met regularly with Registry staff to provide input on survey development, outreach, in-depth studies and other research projects. After the creation of the WTC Health Program at NIOSH with its Survivor Steering Committee (SSC) and Responder Steering Committees (RSC) in 2011-12, there was no longer a need for regular meetings with Registry community and labor advisory committees. The SSC and RSC include Registry community and labor advisors respectively. The Registry’s Public Affairs Liason attends the monthly SSC meetings and the Registry Director and/or Medical Director attend the monthly RSC meetings. The Registry continues to meet with scientific, labor and community advisors and the Manhattan Community Board as needed, for example, to get input on the content of Registry surveys and assistance with outreach to boost response rates.

Government Agency Collaborators

  • National Institute for Occupational Safety and Health (NIOSH)
  • Agency for Toxic Substances and Disease Registry (ATSDR)
  • Centers for Disease Control and Prevention (CDC)

Scientific Advisors and/or Collaborators

  • Albert Einstein College of Medicine
  • Boston University – School of Public Health
  • City University of New York – Graduate School of Public Health and Health Policy
  • City University of New York - Hunter College
  • City University of New York - Queens College
  • Columbia University - Mailman School of Public Health
  • Columbia University – Medical Center
  • Columbia University - New York Psychiatric Institute
  • Cornell University
  • Fire Department of New York City (FDNY) - Bureau of Health Services
  • Fordham University
  • HHC WTC Environmental Health Center at Bellevue Hospital Center
  • Hospital for Special Surgery
  • Johns Hopkins University - Bloomberg School of Public Health
  • Mount Sinai Medical Center
  • New School University
  • New York City Police Department - Chief Surgeon's Office
  • NYU Medical Center
  • New York State Department of Health
  • Rutgers University
  • San Francisco State University
  • State University of New York – Albany – School of Public Health
  • State University of New York - Stonybrook
  • State University of New York -Stonybrook University Medical Center
  • University of California – San Francisco – School of Medicine
  • University of Greenwich (United Kingdom)
  • Weill Cornell Medicine