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The Registry’s 2020 Health Survey (Wave 5) will continue to monitor the physical and mental health of enrollees, now all adults, 19 to 20 years after 9/11.
This report shares new findings about the relationship between 9/11 and stroke, confusion and memory loss, pulmonary fibrosis, and early retirement.
Researchers at World Trade Center Health Registry found that some children exposed to the 9/11 disaster developed behavioral health conditions as adolescents as well as mental health and substance use disorders later in life.
Registries allow researchers and health professionals to track and investigate illness and recovery related to disasters. Lessons learned from a disaster can also save lives and reduce injuries in future disasters. The federal Agency for Toxic Substances and Disease Registry and the New York City Health Department established the World Trade Center (WTC) Health Registry in 2002 to monitor the health of people directly exposed to the 9/11 WTC disaster. The Registry became the largest post-disaster registry in U.S. history when more than 71,000 responders and survivors voluntarily enrolled in 2003-04. Since May 2009, the Registry has been funded by the National Institute for Occupational Safety and Health and has ongoing collaborations with academic and governmental entities and medical institutions.
The WTC Health Registry periodically follows-up with enrollees to track changes in physical and mental health over time and gaps in care.